Allowing patients to read the free-text notes that clinicians write about them can raise satisfaction, increase medication adherence and build trust, according to the most extensive systematic review led by researchers from our Digital Health theme and Imperial College London and published in BMJ Quality & Safety.
Our researchers analysed 19 international studies, including over 203,000 patients, evaluating outcomes across the Institute of Medicine’s six quality domains: patient centredness, safety, equity, effectiveness, timeliness, and efficiency. Risk of bias was assessed using the ROBINS I tool.
19 international studies involving 203,152 participants were examined.
Patient-centred benefits: 11 studies found higher engagement; seven reported stronger patient-provider trust; six showed greater satisfaction.
Safety gains: patients spotting errors and improving medication adherence were documented in 14 studies.
Equity signal: non-White, older, less-educated, and non-English-speaking patients often benefited the most.
No evidence of increased workload or reduced documentation quality for staff.
Gaps in evidence remain around impacts on clinical effectiveness and timeliness of care.
The Government’s new Fit for the Future: 10 Year Health Plan for England puts the NHS App and a Single Patient Record at the heart of a ‘doctor-in-your-pocket’ service, promising full record access for every citizen by 2028 (Guardian 2025).
The review’s evidence that note-sharing boosts engagement without raising workload supports the Plan’s goal of shifting demand away from face-to-face appointments.
Demonstrated benefits for underserved groups advance the Plan’s commitment to reduce health inequalities by using digital tools (The King's Fund 2025).
Documented privacy concerns highlight the need for the Plan’s pledged investment in cybersecurity and digital literacy so that every patient can use online records safely and confidently.
Mandate prospective online access to clinicians’ notes across all NHS settings, building on existing GP record initiatives.
Embed plain-language training for staff so notes are understandable and actionable.
Co-design digital services with patients and caregivers, with particular focus on older adults, minoritised communities and people with limited digital skills.
Monitor impact metrics, including medication safety, service utilisation and patient-reported experience, to plug the remaining evidence gaps on effectiveness and timeliness.
While overwhelmingly positive, the review underscores the critical importance of privacy, cybersecurity, and clinician engagement to maintain data integrity and trust.
For interviews, please contact Dr Ana Neves: ana.luisa.neves14@imperial.ac.uk
This news story is associated with our Digital Health theme.
This work is independent research supported by the National Institute for Health and Care Research (NIHR) Applied Research Collaboration Northwest London (ARC NWL).